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2nd Patient Advocacy Certificate Training (PACT)
May 9 - May 11
PROFESSIONAL PATIENT ADVOCATES IN LIFE SCIENCES (PPALS) AND
SANFORD RESEARCH ANNOUNCES the 2017
PATIENT ADVOCACY CERTIFICATE TRAINING (PACT)
The Sanford and PPALS’ PACT is an opportunity for individuals to enhance their professional development by enrolling in a comprehensive curriculum which focuses on increasing the competencies and expertise of patient advocates in the life sciences.
Over the course of two days, attendees will receive valuable training from a faculty who are recognized as experts in patient advocacy, drug development, scientific and medical research, regulatory/compliance, communications, non-profit governance and public policy. The curriculum has been designed to address the professional development needs of:
- Individuals who work in the health and life sciences arena (Track I)
- Individuals in senior leadership positions for a non-profit patient advocacy organization (Track II)
Upon completion of PACT, a Sanford/PPALS certificate will be awarded to all participants. Track I participants are encouraged to research, design, implement and successfully complete a Capstone Project for their professional development. Track II participants may complete a Reflection paper based on their experience.
Dates: May 9 to 11, 2017 (Tuesday through Thursday)
- May 9, 2017: Evening Reception and Opening Session 5:00 pm CT
- May 10, 2017: Track I & II Sessions 8:45 am CT to 5:30 pm CT
- May 11, 2017: Track I & II Sessions 8:45 am CT to 5:30 pm CT
Location of Course: Sanford Research Institute, 2301 E 60th Street North, Sioux Falls, SD 57104
Registration for Course: There is a limit of 60 participants for the entire program (Tracks I & II combined). Online registration is available through this link:
Deadline for course registration is May 5, 2017.
Registration fees: includes welcome reception, lunches, dinner, refreshment breaks on Sanford campus and course materials.
- Track I: $1,250 for individuals working in an industry patient advocacy function (includes a PPALS annual membership fee of $300)
- Track II: $250 for individuals in a senior leadership position for a non-profit health organization (Executive Director, Senior Staff person or Board of Directors Chair or Co-chair).
Hotel: A block of rooms has been reserved at the Club House Hotel and Suites, 2323 S Louise Avenue, Sioux Falls, SD 57106. Please call 1-800-CLUBINN; or 1-605-361-8700 to make your room reservations. Refer to the Sanford/PPALS room block for the special rates of $92.00 (1-4 person occupancy) plus 9.5% Tax + $2.00 City Occupancy Tax. Inform hotel that you are reserving a room with Sanford/PPALS group http://siouxfalls.clubhouseinn.com/ Rooms need to be reserved by April 14, 2017.
Travel: Sioux Falls is serviced by Sioux Falls Regional Airport, Joe Foss Field http://www.sfairport.com
- Drug Development
- Introduction to CoRDS Registry
- Patient Advocacy Evolution
- Sanford: Who We Are; What We Do
- Building Your Patient Advocacy Function
- Clinical Trials and Patient Reported Outcomes
- How to Best Approach Vendor Selection
- Interacting with Advocacy Organizations and Stakeholders
- Patient Advisory Boards
- Public Policy: What is the role of industry in public policy?
- The ROI of Patient Advocacy
- Telling Your Patient Advocacy Story
- Understanding the Best Practices and Challenges of Interacting with Non-Profit Sector
Track II (Patient Advocacy Organizations
- Building and Sustaining Non-Profit Relationships
- Communication for Patient Advocacy Organizations
- CoRDS Registry for Patient Advocacy Organizations
- Introduction to Rare Disease Public Policy
- Maintaining a Patient Advocacy Organization: An Annual Check-up
- Public Policy on State and Local Levels
- Reimbursement and Access to Drugs
- Understanding the Clinical Trial Process:
- Working with Industry
Distinguished Faculty (confirmed): Jean Campbell, Principal, JF Campbell Consultants; Diane Dorman, Principal, DD Consulting; Patti Engel, President, Engage Health; Jayne Gershkowitz, Chief Patient Advocate, Amicus Therapeutics; Maria Hardin, Senior Advisor, JF Campbell Consultants; Nancy Harris, Principal, Harris Consulting; David LaGreca, Principal, David LaGreca & Associates; Meg Leal, Esq., President, MWL Consulting; Nita Patel, RN, Senior Director, Professional & Patient Advocacy, Amicus Therapeutics; David Pearce PhD, President of Research, Sanford Health, Director Children’ Health Research Center; Chris Smith, President, SmithSolve; Barbara Wedehase, MSW, Principal, Wedehase Consulting; Barbara Wuebbels RN, Vice President, Patient Advocacy, Audentes Therapeutics.