PPALS was founded by Jean Campbell, Jayne Gershkowitz and Barbara Wuebbels

They manage the Patient Advocacy function within their respective companies. PPALS is incorporated in the State of Connecticut as of December 2014 and is a recognized 501(c)(3) non-profit organization.

Jean Campbell

Jean Campbell

Co-Founder, PPALS

Jean Campbell serves as co-founder of the PPALS organization and sits on the executive board. She is a nationally recognized advocate for patients with rare diseases. In 2010, Jean founded the JF Campbell Consultants LLC, providing leaders in the pharmaceutical industry with guidelines on best practices on how to interact with patient groups, especially those that represent rare disease patients. She also lends her valuable perspective and hands-on support to the pharmaceutical PR firm SmithSolve Consulting, LLC. Prior to starting JF Campbell Consultant LLC, Jean worked at the National Organization for Rare Diseases for nearly two decades, generating an impressive record of success in membership development, fundraising and corporate relations.

Jean earned a Bachelor of Arts degree in History from the City University of New York-Hunter College and a certification in Non Profit Management from the Columbia University’s Business School.

Jayne Gershkowitz

Jayne Gershkowitz

Co-Founder, PPALS

Jayne Gershkowitz serves as co-founder of the PPALS organization and sits on the executive board. She is a long-time Patient Advocacy professional with expertise in the rare disease community, specifically in respect to lysosomal storage diseases (LSDs). Since June 2006, Jayne has served as Senior Vice President and Chief Patient Advocate of Amicus Therapeutics. Prior to joining Amicus, she served as Executive Director at the National Tay-Sachs and Allied Diseases Association, where she co-founded the LSD Research Consortium in partnership with the National Institute of Neurological Disorders and Strokes. She is also the co-founder and Chair of the Patient Advocacy Committee of BioNJ.

Jayne earned a Master’s degree in Marketing and Marketing Management from the Radcliffe Graduate Seminars Program, and a Bachelor of Arts degree in Newspaper Journalism and English Literature from Syracuse University.

Barbara Wuebbels, RN, MS

Barbara Wuebbels, RN, MS

Co-Founder, PPALS

Barbara Wuebbels serves as co-founder of the PPALS organization and sits on the executive board. She has more than 15 years of experience working with patients, patient organizations and clinicians in the rare disease community. Since October 2013, Barbara has served as Vice President of Patient Advocacy for Audentes Therapeutics. Prior to joining Audentes, she spent 6 years at BioMarin Pharmaceutical Inc. where she held positions of increasing responsibility in Patient Advocacy and medical affairs. This work included the creation of a global Patient Advocacy and investigator relations department. Through this new department, she linked the critical perspectives of Patient Advocates with the internal planning of clinical and commercial activities. Barbara currently serves on the board of the Battens Disease Support and Research Association.

Barbara earned a Master’s degree in Adult Health Nursing from Arizona State University, and a Bachelor of Science degree in Nursing from St. Louis University.

Meg Leal

Meg Leal

Board Legal Counsel

Meg Wuebbels Leal is the President of MWL Consulting, LLC, a political and legislative consulting services firm utilizing over 20 years of experience as a lobbyist in legislative, governmental, and public affairs representing a variety of interests at municipal, county, state and federal levels. Previously she served Senior Counsel and Local Government Relations Director for the largest public power utility in the southwest. She was the Director of Legislative Affairs for Arizona Governor Janet Napolitano and served as Assistant Counsel on the United States Senate Judiciary committee. She is a cum laude graduate of the University of Arizona James E. Rogers College of Law and has a Bachelor’s degree from Southern Methodist University in Dallas, Texas. Meg and her husband Mike, also an attorney, live in Phoenix, Arizona with their 6 year old son. Meg and her son recently co-authored and illustrated a children’s book together.