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September 2019

Rare Patient Advocacy Summit*

September 18 @ 8:00 am - September 20 @ 5:00 pm
Sheraton San Diego Hotel and Marina, 1380 Harbor Island Drive
San Diego, CA United States
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As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge…

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2019 PCORI Annual Meeting*

September 18 @ 1:00 pm - September 20 @ 1:30 pm
Washington Marriott Wardman Park, 2660 Woodley Road NW
Washington, DC, 20008
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2019 PCORI Annual Meeting - Making a Difference: Using Patient-Centered Research Results in the Real World As part of this year's theme, "Making a Difference: Using Patient-Centered Research Results in the…

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November 2019

World Orphan Drug Congress 2019 – Europe

November 12 - November 14
Barcelona Spain + Google Map

World Orphan Drug Congress is Europe's meeting place for the rare disease community. The Conference offers strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to…

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International Conference on Rare Diseases & Orphan Drugs (ICORD) 14th Annual Meeting*

November 12 - November 14
Tel Aviv Israel + Google Map

ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals.…

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December 2019

Rare Voice Awards

December 4 @ 6:00 pm - 10:30 pm
Arena Stage, 1101 6th Street, SW
Washington, DC, United States
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The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff…

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January 2020

A Rare Affair

January 12, 2020 @ 6:30 pm - 10:00 pm
San Francisco, CA San Francisco, CA + Google Map

Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates on Sunday, January 12th for A Rare Affair, the wine tasting and networking event hosted by…

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Rare in the Square

January 13, 2020 @ 8:00 am - January 15, 2020 @ 5:00 pm
Union Square, 335 Powell Street
San Francisco, CA United States
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Set in San Francisco’s Union Square, RARE in the Square brings together rare disease innovators to forge partnerships and advance innovation. The event takes place in concurrence with the J.P.…

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February 2020

16th Annual WORLDsymposium

February 10, 2020 - February 13, 2020
Hyatt Regency Orlando, 9801 International Drive
Orlando, FL 32819 United States
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WORLDSymposium™ is an annual research conference dedicated to lysosomal diseases. WORLD is an acronym that stands for We’re Organizing Research on Lysosomal Diseases. Since its inception as a small group of passionate researchers…

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Rare Disease Week on Capitol Hill 2020

February 25, 2020 - February 28, 2020
Washington, DC

WHAT IS RARE DISEASE WEEK ON CAPITOL HILL? Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative…

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May 2020

5th Annual Sanford/PPALS PACT *

May 11, 2020 - May 14, 2020
Sanford Research Center, Sioux Falls, SD Sioux Falls, SD United States + Google Map

Professional Patient Advocates in Life Sciences (PPALS), in conjunction with Sanford Research Institute, created the Patient Advocacy Certificate Training (PACT) course of study for health and life science professionals and…

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