Events
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September 2019
Rare Patient Advocacy Summit*
As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge…
Find out more »2019 PCORI Annual Meeting*
2019 PCORI Annual Meeting - Making a Difference: Using Patient-Centered Research Results in the Real World As part of this year's theme, "Making a Difference: Using Patient-Centered Research Results in the…
Find out more »November 2019
World Orphan Drug Congress 2019 – Europe
World Orphan Drug Congress is Europe's meeting place for the rare disease community. The Conference offers strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to…
Find out more »International Conference on Rare Diseases & Orphan Drugs (ICORD) 14th Annual Meeting*
ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals.…
Find out more »December 2019
Rare Voice Awards
The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff…
Find out more »January 2020
A Rare Affair
Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates on Sunday, January 12th for A Rare Affair, the wine tasting and networking event hosted by…
Find out more »Rare in the Square
Set in San Francisco’s Union Square, RARE in the Square brings together rare disease innovators to forge partnerships and advance innovation. The event takes place in concurrence with the J.P.…
Find out more »February 2020
16th Annual WORLDsymposium
WORLDSymposium™ is an annual research conference dedicated to lysosomal diseases. WORLD is an acronym that stands for We’re Organizing Research on Lysosomal Diseases. Since its inception as a small group of passionate researchers…
Find out more »Rare Disease Week on Capitol Hill 2020
WHAT IS RARE DISEASE WEEK ON CAPITOL HILL? Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative…
Find out more »May 2020
5th Annual Sanford/PPALS PACT *
Professional Patient Advocates in Life Sciences (PPALS), in conjunction with Sanford Research Institute, created the Patient Advocacy Certificate Training (PACT) course of study for health and life science professionals and…
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