Events
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EveryLife Foundation Rare Voice Awards, Washington DC
December 14, 2022 @ 6:00 pm - 10:00 pm
Awardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD).
RareVoice Awards recipients are chosen by a committee from nominations received from the rare disease community. Thank you to the members of the RareVoice Nominations Committee, including:
David Eckstein, Office of Clinical Research, NIH
Stephen Groft, EveryLife Foundation Board Member
Sarah-Lloyd Stevenson, Amazon
Lisa Schill, Patient Advocacy and Engagement Consultant
Kathleen Tighe, Sanofi Genzyme
Shayne Woods, Office of Senator Tim Scott
