The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff...
Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates on Sunday, January 12th for A Rare Affair, the wine tasting and networking event hosted by...
Set in San Francisco’s Union Square, RARE in the Square brings together rare disease innovators to forge partnerships and advance innovation. The event takes place in concurrence with the J.P....
WORLDSymposium™ is an annual research conference dedicated to lysosomal diseases. WORLD is an acronym that stands for We’re Organizing Research on Lysosomal Diseases. Since its inception as a small group of passionate researchers...
WHAT IS RARE DISEASE WEEK ON CAPITOL HILL? Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative...
About DIA 2020 Global Annual Meeting For more than 50 years, DIA has provided the world’s largest global, neutral stage for life science professionals to come together and address healthcare...
The Integration of the Patient Voice in Metrics to Predict Clinical Trial Success Join us to learn how BioMarin, a global pharmaceutical company, has effectively used metrics to incorporate the...
Shaping the Patient Advocate Role through Health Equity, Diversity and Inclusion Part 1: Diversity in Talent of Patient Advocacy Join us for a webinar series that will educate on how...
Sanford Research and its investigators have a strong interest in and commitment to finding cures and treatments for rare diseases. In honor of the 15th annual celebration of Global Rare Disease...
NORD Summit October 17-18 2022 This year, NORD is thrilled to welcome all community stakeholders back together in-person to Washington, DC for the 2022 Rare Diseases and Orphan Products...
Awardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD). RareVoice Awards recipients are chosen...
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