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Rare Disease Week on Capitol Hill 2020

February 25, 2020 - February 28, 2020

WHAT IS RARE DISEASE WEEK ON CAPITOL HILL?

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.

Registration for Rare Disease Week on Capitol Hill 2020 will open in January 2020.

Tentative Schedule of Events

The week includes the following events, all of which are free for patients, caregivers and other advocates.

Tuesday, February 25th: Rare Disease Congressional Caucus briefing

Tuesday, February 25th: Cocktail Reception and Rare Disease Documentary Screening

Wednesday, February 26th, 8:00 am – 4:45 pm: Legislative Conference at the Ronald Reagan Building.

Thursday, February 27th: Lobby Day Breakfast

Thursday, February 27th, 9:00 am – 5:00 pm: Scheduled Meetings with Members of the House and Senate on Capitol Hill

Thursday, February 27th: Rare Artist Reception

Friday, February 28th: Rare Disease Day at NIH in Bethesda, MD

The Rare Disease Week on Capitol Hill Legislative Conference and Lobby Day is an event established for patients and caregivers, patient advocates, and patient advocacy organizations. While representatives from industry are invited to attend the Legislative Conference, the lobby day is for patients and caregivers, patients advocates, and patient advocacy organizations only.

TRAVEL ARRANGEMENTS

Attendees need to make their own travel arrangements including hotel reservations.

LEARN MORE

Details

Start:
February 25, 2020
End:
February 28, 2020
Website:
https://rareadvocates.org/rdw/

Organizer

Everylife Foundation
Website:
https://everylifefoundation.org/

Venue

Washington, DC