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2nd Patient Advocacy Certificate Training (PACT)

May 9, 2017 - May 11, 2017





The Sanford and PPALS’ PACT is an opportunity for individuals to enhance their professional development by enrolling in a comprehensive curriculum which focuses on increasing the competencies and expertise of patient advocates in the life sciences. 

Over the course of two days, attendees will receive valuable training from a faculty who are recognized as experts in patient advocacy, drug development, scientific and medical research, regulatory/compliance, communications, non-profit governance and public policy.  The curriculum has been designed to address the professional development needs of:

  • Individuals who work in the health and life sciences arena (Track I)
  • Individuals in senior leadership positions for a non-profit patient advocacy organization (Track II)

Upon completion of  PACT, a Sanford/PPALS certificate will be awarded to all participants. Track I participants are encouraged to research, design, implement and successfully complete a Capstone Project for their professional development. Track II participants may complete a Reflection paper based on their experience. 

Dates:  May 9 to 11, 2017 (Tuesday through Thursday)

  • May 9, 2017:  Evening Reception and Opening Session 5:00 pm CT
  • May 10, 2017: Track I & II Sessions  8:45 am CT to 5:30 pm CT
  • May 11, 2017: Track I & II Sessions  8:45 am CT to 5:30 pm CT

Location of Course:   Sanford Research Institute, 2301 E 60th Street North, Sioux Falls, SD  57104

Registration for Course: There is a limit of 60 participants for the entire program (Tracks I & II combined).  Online registration is available through this link:

Deadline for course registration is May 5, 2017.

Registration fees: includes welcome reception, lunches, dinner, refreshment breaks on Sanford campus and course materials.

  • Track I: $1,250 for individuals working in an industry patient advocacy function (includes a PPALS annual membership fee of $300)
  • Track II: $250 for individuals in a senior leadership position for a non-profit health organization (Executive Director, Senior Staff person or Board of Directors Chair or Co-chair).

Hotel:  A block of rooms has been reserved at the Club House Hotel and Suites, 2323 S Louise Avenue, Sioux Falls, SD 57106. Please call 1-800-CLUBINN; or 1-605-361-8700 to make your room reservations.  Refer to the Sanford/PPALS room block for the special rates of $92.00 (1-4 person occupancy) plus 9.5% Tax + $2.00 City Occupancy Tax. Inform hotel that you are reserving a room with Sanford/PPALS group  Rooms need to be reserved by April 14, 2017.

Travel:  Sioux Falls is serviced by Sioux Falls Regional Airport, Joe Foss Field

Curriculum Content

General Sessions:

  • Drug Development
  • Introduction to CoRDS Registry
  • Patient Advocacy Evolution
  • Sanford: Who We Are; What We Do

Track I

  • Building Your Patient Advocacy Function
  • Clinical Trials and Patient Reported Outcomes
  • How to Best Approach Vendor Selection
  • Interacting with Advocacy Organizations and Stakeholders
  • Patient Advisory Boards
  • Public Policy: What is the role of industry in public policy?
  • The ROI of Patient Advocacy
  • Telling Your Patient Advocacy Story
  • Understanding the Best Practices and Challenges of Interacting with Non-Profit Sector

Track II (Patient Advocacy Organizations

  • Building and Sustaining Non-Profit Relationships
  • Communication for Patient Advocacy Organizations
  • CoRDS Registry for Patient Advocacy Organizations
  • Introduction to Rare Disease Public Policy
  • Maintaining a Patient Advocacy Organization: An Annual Check-up
  • Public Policy on State and Local Levels
  • Reimbursement and Access to Drugs
  • Understanding the Clinical Trial Process:
  • Working with Industry

Distinguished Faculty (confirmed):  Jean Campbell, Principal, JF Campbell Consultants; Diane Dorman, Principal, DD Consulting; Patti Engel, President, Engage Health; Jayne Gershkowitz, Chief Patient Advocate, Amicus Therapeutics; Maria Hardin, Senior Advisor, JF Campbell Consultants; Nancy Harris, Principal, Harris Consulting; David LaGreca, Principal, David LaGreca & Associates;  Meg Leal, Esq., President, MWL Consulting;  Nita Patel, RN, Senior Director, Professional & Patient Advocacy, Amicus Therapeutics; David Pearce PhD, President of Research, Sanford Health, Director Children’ Health Research Center; Chris Smith, President, SmithSolve;  Barbara Wedehase, MSW, Principal, Wedehase Consulting;  Barbara Wuebbels RN, Vice President, Patient Advocacy, Audentes Therapeutics.




Sanford Center
2301 East 60th Street North
Sioux Falls, SD 57104 United States
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