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Rare on the Road

July 13, 2019

The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates.

We are uniting to build and activate the rare disease community at the local level. Whether you’re new to the rare disease community or a “seasoned veteran” this workshop will benefit you!

The 2019 event dates and locations are below. Register today at

LEARN how to tell your rare disease story.
RECOGNIZE how you can impact public policy and help save lives.
CONNECT with other rare disease patients and advocates.
DISCOVER how to get engaged on social media. Featuring Mayo Clinic social media experts.

Want to join us, but need help covering travel costs? Apply for a travel stipend today.

Due to the generous support of our sponsors, breakfast, lunch and a tour t-shirt are included!

For information on 2019 sponsorship opportunities, please contact Carol Kennedy at

RARE on the Road is co-hosted by:


July 13, 2019


Everylife Foundation
Global Genes


Sanford Research Center, Sioux Falls, SD
Sioux Falls, SD United States + Google Map
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