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Rare Patient Advocacy Summit*

September 18, 2019 @ 8:00 am - September 20, 2019 @ 5:00 pm

As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge meaningful connections with other rare advocates and take home actionable strategies and tools to accelerate change.

This year, the Summit will take place in San Diego at the Sheraton San Diego Hotel & Marina.

Your Summit Experience

» A jam-packed, two-day program filled with TED-style keynotes and five tracks of compelling educational content ranging from the latest in care to cutting-edge research and therapies.

» 100 exhibits featuring programs and services for the rare disease community.

» Workshops, dinners and networking activities to inspire conversations and spark collaborations.

» The Summit app with the tools to help you navigate session tracks like a pro, communicate and network with Summit attendees from around the world.

» The awe-inspiring RARE Champions of Hope Celebration honoring the individuals who are relentless in their efforts to affect change for the rare disease community through advocacy, collaboration and medical care and treatment.

Travel Scholarships: The priority deadline to apply for a travel scholarship has passed. Any applicants will now be put on the waitlist. Please view the FAQs for more information.

From: 09/18/2019 – To: 09/20/2019

08:00 AM – 05:00 PM UTC-12:00

1380 Harbor Island Drive, San Diego, California, United States of America


September 18, 2019 @ 8:00 am
September 20, 2019 @ 5:00 pm


Global Genes
View Organizer Website


Sheraton San Diego Hotel and Marina
1380 Harbor Island Drive
San Diego, CA United States
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