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2018 PATIENT ADVOCACY CERTIFICATE TRAINING (PACT)
May 9, 2018 @ 6:00 pm - May 11, 2018 @ 5:00 pm
PROFESSIONAL PATIENT ADVOCATES IN LIFE SCIENCES (PPALS) AND SANFORD RESEARCH ANNOUNCES the 2018 PATIENT ADVOCACY CERTIFICATE TRAINING (PACT)
The Sanford and PPALS’ PACT is an opportunity for individuals to enhance their professional development by enrolling in a comprehensive curriculum which focuses on increasing the competencies and expertise of patient advocates in the life sciences.
Over the course of two days, attendees will receive valuable training from a faculty who are recognized as experts in patient advocacy, drug development, scientific and medical research, regulatory/compliance, communications, non-profit governance and public policy. The curriculum has been designed to address the professional development needs of:
- Individuals who work in the health and life sciences arena (Track I)
- Individuals in senior leadership positions for a non-profit patient advocacy organization (Track II)
Upon completion of PACT, a Sanford/PPALS certificate will be awarded to all participants. Track I participants are encouraged to research, design, implement and successfully complete a Capstone Project for their professional development. Track II participants may complete a Reflection paper based on their experience.
This curriculum is designed at the Level 101 for individuals who have not participated at a previous Sanford/PPALS course of study.
Dates: May 9 to 11, 2018 (Wednesday through Friday)
I. May 9, 2018: Evening Reception and Opening Session 6:00 pm
II. May 10, 2018: Track I & II Sessions 8:30 am CT to 5:30 pm CT
III. May 11, 2018: Track I & II Sessions 8:30 am CT to 4:30 pm CT
Location of Course: Sanford Research Institute, 2301 E 60th Street North, Sioux Falls, SD 57104
Registration for Course: Online registration is available through Sanford Research
Deadline for course registration is May 1, 2018.
Registration fees: includes welcome reception, lunches, dinner, refreshment breaks on Sanford campus and course materials.
Track I: Non PPALS Member: $1,250 for individuals working in an industry patient advocacy function (this registration includes a PPALS annual membership valued at $300)
Track I: PPALS Members: $950 for current PPALS members working in industry as patient advocates in life sciences
Track II: $250 for individuals in a senior leadership position for a non-profit health organization (Executive Director, Senior Staff person or
Board of Directors Chair or Co-chair).
Hotel: Reservations for rooms can be made at the Club House Hotel and Suites, 2323 S Louise Avenue, Sioux Falls, SD 57106. Please call 1-800- CLUBINN; or 1-605- 361-8700 to make your room reservations. Additional information will be provided soon.
Travel: Sioux Falls is serviced by Sioux Falls Regional Airport, Joe Foss Field http://www.sfairport.com
Curriculum Content
General Sessions: Level 101 Track I & II
- Drug Development
- Introduction to CoRDS Registry
- Patient Advocacy Evolution
- Sanford: Who We Are; What We Do
Track I: Level 101 for individuals working in Industry
- Building Your Patient Advocacy Function
- Clinical Trials and Patient Reported Outcomes
- How to Best Approach Vendor Selection
- Interacting with Advocacy Organizations and Stakeholders
- Patient Advisory Boards
- Public Policy: What is the role of industry in public policy?
- The ROI of Patient Advocacy
- Telling Your Patient Advocacy Story
- Understanding the Best Practices and Challenges of Interacting with Non-Profit Sector
Track II: Level 101 for leaders of Patient Advocacy Organizations
- Building and Sustaining Non-Profit Relationships
- Communication for Patient Advocacy Organizations
- CoRDS Registry for Patient Advocacy Organizations
- Introduction to Rare Disease Public Policy
- Maintaining a Patient Advocacy Organization: An Annual Check-up
- Public Policy on State and Local Levels
- Reimbursement and Access to Drugs
- Understanding the Clinical Trial Process:
- Working with Industry
Distinguished Faculty: The Sanford/PPALS PACT Faculty is comprised of leading and well respected individuals who have a depth of experience and expertise in life sciences, healthcare and rare diseases.
- Max Bronstein, Senior Director, Health Policy & Corporate Affairs, Audentes Therapeutics
- Jean Campbell, Principal, JF Campbell Consultants
- Archana Chatterjee, Head of Pediatrics, Sanford School of Medicine
- Gissoo Decotiis, On Deputy Director, Oncology Advocacy Relations – Bayer Healthcare
- Jill Dolgin, PharmD, Head of Patient Advocacy AGTC
- Diane Dorman, Principal, DD Consulting
- Patti Engel, President, Engage Health
- Margie Frazier, Executive Director, Batten’s Disease Support & Research Foundation
- Jayne Gershkowitz, Chief Patient Advocate, Amicus Therapeutics
- Marlene Haffner, MD, Principal, Haffner Associates, LLC
- Barbara Handelin, Founder, NovoKen
- Maria Hardin, Senior Advisor, JF Campbell Consultants
- Nancy Harris, Principal, Harris Consulting
- David LaGreca, Principal, David LaGreca & Associates
- Meg Leal, Esq., President, MWL Consulting
- Austin Letcher, Senior Research Associate at the Coordination of Rare Diseases at Sanford Research
- Nita Patel, RN, Senior Director, Professional & Patient Advocacy, Amicus Therapeutics
- David Pearce PhD, President of Research, Sanford Health, Director Children’ Health Research Center
- Robert Tomaino, Principal, Orphan Communications
- Chris Smith, President, SmithSolve
- Barbara Wedehase, MSW, Principal, Wedehase Consulting
- Barbara Wuebbels RN, Co-Founder and Board Chair, Professional Patient Advocates in Life Sciences.
