PROFESSIONAL PATIENT ADVOCATES IN LIFE SCIENCES (PPALS) AND SANFORD RESEARCH ANNOUNCES the 2018 PATIENT ADVOCACY CERTIFICATE TRAINING (PACT) The Sanford and PPALS’ PACT is an opportunity for individuals to enhance...
Sanford/PPALS Patient Advocacy Certificate Training (PACT) May 6-9, 2019 Sanford Research Institute, Sioux Falls, SD Professional Patient Advocates in Life Sciences (PPALS), in conjunction with Sanford Research Institute, will host...
The Great Plains Rare Disease Summit - Scientific Day Friday, May 10, 2019 8:00 a.m. – 4:30 p.m. Pre-registration required by May 3, 2019 For questions, please contact cords@sanfordhealth.org Speakers: Tinna...
The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients,...
Enhancing Patient Advocacy Initiatives through an Increased Focus on Diverse Patient Populations and Comprehensive Alliance Building Efforts While Strategizing for Innovative and Improved Access Opportunities, Optimizing Data Circulation and Partnering...
11th Annual Rare Disease Scientific Workshop: Science of Small Trials in the Age of Biological Plausibility Thursday, September 5, 2019 8:30 a.m. until 4:00 p.m. Willard InterContinental Washington 1401 Pennsylvania...
As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge...
2019 PCORI Annual Meeting - Making a Difference: Using Patient-Centered Research Results in the Real World As part of this year's theme, "Making a Difference: Using Patient-Centered Research Results in the...
World Orphan Drug Congress is Europe's meeting place for the rare disease community. The Conference offers strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to...
ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals....
The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff...
Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates on Sunday, January 12th for A Rare Affair, the wine tasting and networking event hosted by...
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