Events
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December 2019
Rare Voice Awards
The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff…
Find out more »January 2020
A Rare Affair
Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates on Sunday, January 12th for A Rare Affair, the wine tasting and networking event hosted by…
Find out more »Rare in the Square
Set in San Francisco’s Union Square, RARE in the Square brings together rare disease innovators to forge partnerships and advance innovation. The event takes place in concurrence with the J.P.…
Find out more »February 2020
16th Annual WORLDsymposium
WORLDSymposium™ is an annual research conference dedicated to lysosomal diseases. WORLD is an acronym that stands for We’re Organizing Research on Lysosomal Diseases. Since its inception as a small group of passionate researchers…
Find out more »Rare Disease Week on Capitol Hill 2020
WHAT IS RARE DISEASE WEEK ON CAPITOL HILL? Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative…
Find out more »May 2020
5th Annual Sanford/PPALS PACT *
Dear PPALS supporters, After closely monitoring the rapidly evolving COVID-19 public health crisis, Professional Patient Advocates in Life Sciences' (PPALS) curriculum planning team, has decided to cancel the 2020 Sanford/…
Find out more »June 2020
DIA 2020 Global Annual Meeting in Washington
About DIA 2020 Global Annual Meeting For more than 50 years, DIA has provided the world’s largest global, neutral stage for life science professionals to come together and address healthcare…
Find out more »February 2021
PPALS Webinar Series
The Integration of the Patient Voice in Metrics to Predict Clinical Trial Success Join us to learn how BioMarin, a global pharmaceutical company, has effectively used metrics to incorporate the…
Find out more »December 2021
PPALS Webinar Series
Shaping the Patient Advocate Role through Health Equity, Diversity and Inclusion Part 1: Diversity in Talent of Patient Advocacy Join us for a webinar series that will educate on how…
Find out more »May 2022
12th Annual Great Plains Rare Disease Summit
Sanford Research and its investigators have a strong interest in and commitment to finding cures and treatments for rare diseases. In honor of the 15th annual celebration of Global Rare Disease…
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