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December 2019

Rare Voice Awards

December 4, 2019 @ 6:00 pm - 10:30 pm
Arena Stage, 1101 6th Street, SW
Washington, DC, United States
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The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff…

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January 2020

A Rare Affair

January 12, 2020 @ 6:30 pm - 10:00 pm
San Francisco, CA San Francisco, CA + Google Map

Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates on Sunday, January 12th for A Rare Affair, the wine tasting and networking event hosted by…

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Rare in the Square

January 13, 2020 @ 8:00 am - January 15, 2020 @ 5:00 pm
Union Square, 335 Powell Street
San Francisco, CA United States
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Set in San Francisco’s Union Square, RARE in the Square brings together rare disease innovators to forge partnerships and advance innovation. The event takes place in concurrence with the J.P.…

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February 2020

16th Annual WORLDsymposium

February 10, 2020 - February 13, 2020
Hyatt Regency Orlando, 9801 International Drive
Orlando, FL 32819 United States
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WORLDSymposium™ is an annual research conference dedicated to lysosomal diseases. WORLD is an acronym that stands for We’re Organizing Research on Lysosomal Diseases. Since its inception as a small group of passionate researchers…

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Rare Disease Week on Capitol Hill 2020

February 25, 2020 - February 28, 2020
Washington, DC

WHAT IS RARE DISEASE WEEK ON CAPITOL HILL? Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative…

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May 2020

5th Annual Sanford/PPALS PACT *

May 11, 2020 - May 14, 2020
Sanford Research Center, Sioux Falls, SD Sioux Falls, SD United States + Google Map

Dear PPALS supporters, After closely monitoring the rapidly evolving COVID-19 public health crisis, Professional Patient Advocates in Life Sciences' (PPALS) curriculum planning team, has decided to cancel the 2020 Sanford/…

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June 2020

DIA 2020 Global Annual Meeting in Washington

June 14, 2020 - June 18, 2020
Washington, DC

About DIA 2020 Global Annual Meeting For more than 50 years, DIA has provided the world’s largest global, neutral stage for life science professionals to come together and address healthcare…

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February 2021

PPALS Webinar Series

February 23, 2021 @ 1:00 pm

The Integration of the Patient Voice in Metrics to Predict Clinical Trial Success Join us to learn how BioMarin, a global pharmaceutical company, has effectively used metrics to incorporate the…

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December 2021

PPALS Webinar Series

December 15, 2021 @ 2:00 pm - 3:00 pm

Shaping the Patient Advocate Role through Health Equity, Diversity and Inclusion Part 1: Diversity in Talent of Patient Advocacy Join us for a webinar series that will educate on how…

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May 2022

12th Annual Great Plains Rare Disease Summit

May 20 - May 21
Sanford Research Center, Sioux Falls, SD Sioux Falls, SD United States + Google Map

Sanford Research and its investigators have a strong interest in and commitment to finding cures and treatments for rare diseases.  In honor of the 15th annual celebration of Global Rare Disease…

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