PPALS Webinar Series
The Integration of the Patient Voice in Metrics to Predict Clinical Trial Success Join us to learn how BioMarin, a global pharmaceutical company, has effectively used metrics to incorporate the...
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Events
PPALS Webinar Series
Shaping the Patient Advocate Role through Health Equity, Diversity and Inclusion Part 1: Diversity in Talent of Patient Advocacy Join us for a webinar series that will educate on how...
12th Annual Great Plains Rare Disease Summit
Sanford Research Center, Sioux Falls, SD Sioux Falls, SD, United StatesSanford Research and its investigators have a strong interest in and commitment to finding cures and treatments for rare diseases. In honor of the 15th annual celebration of Global Rare Disease...
NORD Breakthrough Summit, Washington DC
Marriot Marquis in Washington, DCNORD Summit October 17-18 2022 This year, NORD is thrilled to welcome all community stakeholders back together in-person to Washington, DC for the 2022 Rare Diseases and Orphan Products...
BioNJ Patient Advocacy Summit
Bristol Myers Squibb, Lawrenceville, NJ NJ, United StatesEveryLife Foundation Rare Voice Awards, Washington DC
Arena Stage at The Mead Center for American Theater 1101 6th St SW, Washington, D.C, DC, United StatesAwardees receive an “Abbey” statuette commissioned specially for the RareVoice Awards, and named for Abbey Meyers, founder of the National Organization for Rare Disorders (NORD). RareVoice Awards recipients are chosen...
