Events

As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge...

2019 PCORI Annual Meeting - Making a Difference: Using Patient-Centered Research Results in the Real World As part of this year's theme, "Making a Difference: Using Patient-Centered Research Results in the...

World Orphan Drug Congress is Europe's meeting place for the rare disease community. The Conference offers strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to...

ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals....

The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff...

Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates on Sunday, January 12th for A Rare Affair, the wine tasting and networking event hosted by...

Set in San Francisco’s Union Square, RARE in the Square brings together rare disease innovators to forge partnerships and advance innovation. The event takes place in concurrence with the J.P....

WORLDSymposium™ is an annual research conference dedicated to lysosomal diseases. WORLD is an acronym that stands for We’re Organizing Research on Lysosomal Diseases. Since its inception as a small group of passionate researchers...

WHAT IS RARE DISEASE WEEK ON CAPITOL HILL? Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative...

About DIA 2020 Global Annual Meeting For more than 50 years, DIA has provided the world’s largest global, neutral stage for life science professionals to come together and address healthcare...

The Integration of the Patient Voice in Metrics to Predict Clinical Trial Success Join us to learn how BioMarin, a global pharmaceutical company, has effectively used metrics to incorporate the...

Shaping the Patient Advocate Role through Health Equity, Diversity and Inclusion Part 1: Diversity in Talent of Patient Advocacy Join us for a webinar series that will educate on how...