Events

The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients,...

Enhancing Patient Advocacy Initiatives through an Increased Focus on Diverse Patient Populations and Comprehensive Alliance Building Efforts While Strategizing for Innovative and Improved Access Opportunities, Optimizing Data Circulation and Partnering...

11th Annual Rare Disease Scientific Workshop: Science of Small Trials in the Age of Biological Plausibility Thursday, September 5, 2019 8:30 a.m. until 4:00 p.m. Willard InterContinental Washington 1401 Pennsylvania...

As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge...

2019 PCORI Annual Meeting - Making a Difference: Using Patient-Centered Research Results in the Real World As part of this year's theme, "Making a Difference: Using Patient-Centered Research Results in the...

World Orphan Drug Congress is Europe's meeting place for the rare disease community. The Conference offers strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to...

ICORD is an International Society for all individuals actively involved in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organisations, regulatory authorities, health authorities, and public policy professionals....

The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill. Patient advocates, industry executives, and Congressional and government agency staff...

Join 250 venture capitalists, biotech and finance executives, wine enthusiasts and rare disease advocates on Sunday, January 12th for A Rare Affair, the wine tasting and networking event hosted by...

Set in San Francisco’s Union Square, RARE in the Square brings together rare disease innovators to forge partnerships and advance innovation. The event takes place in concurrence with the J.P....

WORLDSymposium™ is an annual research conference dedicated to lysosomal diseases. WORLD is an acronym that stands for We’re Organizing Research on Lysosomal Diseases. Since its inception as a small group of passionate researchers...

WHAT IS RARE DISEASE WEEK ON CAPITOL HILL? Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative...