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September 2016

Global Genes’ Patient Summit

September 22, 2016 @ 8:00 am - September 23, 2016 @ 5:00 pm
Hyatt Regency Huntington Beach Resort and Spa, 21500 Pacific Coast Highway
Huntington Beach, CA 92648 United States
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PPALS will be attending and exhibiting at Global Genes’ Patient Summit, September 22-23, 2016, Huntington Beach, California https://globalgenes.org/

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October 2016

4th Annual World Congress Summit on Patient Advocacy

October 27, 2016 @ 8:00 am - October 28, 2016 @ 5:00 pm
Hyatt Arlington, 1325 Wilson Blvd
Arlington, VA 22209 United States
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PPALS will be attending and presenting at the 4th Annual World Congress Summit on Patient Advocacy, October27-28, 2016, Arlington, VA

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May 2017

2nd Patient Advocacy Certificate Training (PACT)

May 9, 2017 - May 11, 2017
Sanford Center, 2301 East 60th Street North
Sioux Falls, SD 57104 United States
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PROFESSIONAL PATIENT ADVOCATES IN LIFE SCIENCES (PPALS) and SANFORD RESEARCH ANNOUNCES the 2017
PATIENT ADVOCACY CERTIFICATE TRAINING (PACT)

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May 2018

2018 PATIENT ADVOCACY CERTIFICATE TRAINING (PACT)

May 9, 2018 @ 6:00 pm - May 11, 2018 @ 5:00 pm

PROFESSIONAL PATIENT ADVOCATES IN LIFE SCIENCES (PPALS) AND SANFORD RESEARCH ANNOUNCES the 2018 PATIENT ADVOCACY CERTIFICATE TRAINING (PACT) The Sanford and PPALS’ PACT is an opportunity for individuals to enhance…

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May 2019

Sanford/PPALS Patient Advocacy Certificate Training (PACT) 2019

May 6, 2019 - May 9, 2019

Sanford/PPALS Patient Advocacy Certificate Training (PACT) May 6-9, 2019 Sanford Research Institute, Sioux Falls, SD Professional Patient Advocates in Life Sciences (PPALS), in conjunction with Sanford Research Institute, will host…

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Sanford CoRDS Great Plains Rare Disease Day Summit

May 10, 2019 - May 11, 2019
Sanford Research Center, Sioux Falls, SD Sioux Falls, SD United States + Google Map

The Great Plains Rare Disease Summit - Scientific Day Friday, May 10, 2019 8:00 a.m. – 4:30 p.m. Pre-registration required by May 3, 2019 For questions, please contact cords@sanfordhealth.org Speakers: Tinna…

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July 2019

Rare on the Road

July 13, 2019
Sanford Research Center, Sioux Falls, SD Sioux Falls, SD United States + Google Map

The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients,…

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8th Annual Life Science Strengthening Patient Advocacy Engagement Conference

July 30, 2019 - July 31, 2019
Philadelphia, PA Four Points by Sheraton Philadelphia City Center, 1201 Race St
Philadelphia, PA 19107
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Enhancing Patient Advocacy Initiatives through an Increased Focus on Diverse Patient Populations and Comprehensive Alliance Building Efforts While Strategizing for Innovative and Improved Access Opportunities, Optimizing Data Circulation and Partnering…

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September 2019

11th Annual Rare Disease Scientific Workshop

September 5, 2019 @ 8:30 am - 4:00 pm
Willard InterContinental Washington, 1401 Pennsylvania Ave NW
Washington, DC, 20004 United States
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11th Annual Rare Disease Scientific Workshop: Science of Small Trials in the Age of Biological Plausibility Thursday, September 5, 2019 8:30 a.m. until 4:00 p.m. Willard InterContinental Washington 1401 Pennsylvania…

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Rare Patient Advocacy Summit*

September 18, 2019 @ 8:00 am - September 20, 2019 @ 5:00 pm
Sheraton San Diego Hotel and Marina, 1380 Harbor Island Drive
San Diego, CA United States
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As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge…

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